Monday, May 5, 2008

Car Seat

Look.....I'm forward facing in my carseat now! Shhhh, don't tell anyone because I was suppose to wait until my first birthday.

We had a follow up visit with the Arthrogryposis doctor at UofM today. The visit went much better this time. The doc thinks that Addy is too heavy. Once again, we are back to this issue. She eats what a normal toddler of her age would eat, but because she's not walking or crawling, she's not burning it off at a decent rate. The doc is worried that due to her overall weakness, the weight will only add to her developmental delays. So, now we have to watch what she eats and try hard to make it as low cal as possible.

We also discussed bracing Addy's ankles for more support. She is doing much better with weight bearing, but still has a long way to go. She seems to do much better if we have a pair of supportive tennies on her. Decided to wait on the braces, since it could be one month before she's on her feet more or it could be six months. We will revisit this issue in a couple of months. The doc also noticed that Addy hyperextends one knee when she weight bears. Hopefully just due to muscle weakness at this point, but something to watch.

Lastly, I talked with the doctor about Addy's neck. Her current PT has recently suggested that she be seen by a plastic surgeon at Children's hospital who runs a torticollis clinic. Addy has not made a lot of gains with her ability to turn her neck to the left. I wanted this doctor's opinion. She too felt that Addy should be seen by a plastic surgeon. Most kids should show improvement or recovery by a year old and when they don't it might be time to talk about surgery. So, we will be seeing a plastic surgeon later in May and then may go for a second opinion at another one at UofM after we see the one at Children's Hospital.

That's all for now. Only 2 more days until my 1st birthday!

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