Thursday, February 5, 2009
Sesame Street Live
We took Addy to see Sesame Street Live: When Elmo Grows Up at the Fox Theatre in Detroit. I think I was more excited than Addy was because I couldn't wait to see the reaction on her face when the show started. She absolutely loved it! She was glued to the show the entire time. She's at such a good age for something like this. During the show, she pointed and named the characters as they came on stage. It was very apparent that Elmo was her favorite.
Monday, February 2, 2009
Doctors!!!
Well, I don't usually post my feelings about this, but I am getting completely fed up with doctors! It's like they have this egotistical aura about them that says, let me talk while you listen to what I have to say. Maybe I have some things to say too. Let's see, I'm the one who spends 50-100% of every day with my child. You are seeing this kid for 10-15 minutes and you think that you know everything. How rude! Maybe if you just listened sometimes, you might even learn something new. Boy, that's a concept.
I apologize for my rude words, I guess I just had a bad day. The nerve of a doctor to have no bedside manner and to reassure me that "I'm in this for the long haul and Addison's issues are not short term by any means." I mean what does he think, that I expect her to wake up tomorrow and start walking and running and jumping like a "normal" one and a half year old. No, I don't expect that and I know I'm in this for the long haul. I know my child has a disability and that in some form it will always exist Thanks for the pep talk and the nice pat on the back. Let me tell you, it was really reassuring and you really made my day. NOT!!!!!!
Oh and by the way, you might as well throw away the post about Addy being discharged from occupational therapy because I got my hand slapped for that one too by this same guy. She should have never been discharged and she will need OT and PT for years to come. Sorry, I thought that maybe I could just enjoy one positive thing for once. Guess it wasn't so positive after all. I'm done ranting now. I promise the next post will be better.
I apologize for my rude words, I guess I just had a bad day. The nerve of a doctor to have no bedside manner and to reassure me that "I'm in this for the long haul and Addison's issues are not short term by any means." I mean what does he think, that I expect her to wake up tomorrow and start walking and running and jumping like a "normal" one and a half year old. No, I don't expect that and I know I'm in this for the long haul. I know my child has a disability and that in some form it will always exist Thanks for the pep talk and the nice pat on the back. Let me tell you, it was really reassuring and you really made my day. NOT!!!!!!
Oh and by the way, you might as well throw away the post about Addy being discharged from occupational therapy because I got my hand slapped for that one too by this same guy. She should have never been discharged and she will need OT and PT for years to come. Sorry, I thought that maybe I could just enjoy one positive thing for once. Guess it wasn't so positive after all. I'm done ranting now. I promise the next post will be better.
Friday, January 30, 2009
Sick:(
Well our miss Addison is sick. It started out over the weekend as pink eye and has now turned into RSV. RSV stands for respiratory syncytial virus. It's a respiratory infection of the lungs and breathing passages. It's very common in children, but the main concern is that it can lead to pneumonia. Addy was sent for a chest x-ray to be sure, but so far her lungs are clear. She's running a very high fever as well. Because it's viral, no antibiotic can be given. We are giving her breathing treatments every4 hours along with Motrin and Tylenol. Mom stayed home at the beginning of the week, dad stayed home in the middle and Grandma came to the rescue at the end of the week. Hopefully she will be well enough to return to daycare next week. Get well soon Addy!
Sunday, January 18, 2009
Therapy News
Well, some very exciting therapy news has come about within the last week. Addy's occupational therapist at Children's Hospital was waiting until she turned 20 months old to administer the Peabody Developmental Motor Scales test. Addy has had this test several times in the past since she was 7 months old. There are six subtests involved, but the OT just focuses on two areas, which are grasping and visual motor. Of course since Addy was young, she has scored significantly lower than her normal functioning peers in the area of grasping and the visual motor area has been her strongest area.
So last week, the OT gave Addy the test. I sat and watched in utter amazement. Many of the tasks that she was asked to do, she was actually getting right. Block building, puzzles, bead stringing, writing and folding paper were some of the tasks, just to name a few. The following therapy session, we went in for Addy's test results. To everyone's astonishment, Addy scored an age equivalent of 34 months in grasping and 36 months in visual motor. She is only 20 months old. Even the OT was blown away. Within the past several months, Addy has just really taken off in many areas, including her fine motor.
So, the sad news is that Addy got discharged from OT at Children's Hospital, however she remains having OT through early intervention. I spoke with the OT from early intervention and she has no plans of discharging Addy. We actually have Addy's IEP this upcoming Tuesday. Addy's OT goals there will be changed to reflect working on increasing the speed of doing activities and utilizing her hand function to help improve her gross motor skills. I know that I said that it was sad news and it many ways it's happy, but also sad. Therapy has been our life for the last 2 years and we were very connected to her OT. The good news is that she is going to see Addy back in the summer to make sure she isn't showing any regression and to work on any news areas that might crop up.
So, just after giving me the news that Addy would be discharged, the OT wanted to do a quick feeding evaluation and dressing evaluation with her. So, I have to be honest here. I was a little scared about the dressing because my focus has been on so many other things with Addy, that I haven't even attempted dressing. Being so behind in her physical development, I knew that dressing would be difficult and we just hadn't started that area yet. So, as scared as I was, I sat and watched again in amazement. The OT told Addy "take off your shoes" and Addy took off her shoes. Then she said, "take off your socks" and Addy proceeded to take off her socks. This part she did need minimal help with. Then came time for the pants. With physical help to stand, Addy took off her pants and then went on to do her shirt. I was so amazed that I think I sat there with my mouth wide open. Just goes to show what sponges kids are.
Now that she was naked except for her diaper, the OT took her into the feeding room and put her in a highchair. She wanted to eval her spoon and fork use, which Addy is doing decently with. Then she asked Addy to drink from an open cup. Again, I got scared because I have yet to ask her to do this either. First drink went all down her because I think she expected there to be a lid on it. Next 4 drinks, she did without spilling a drop. She even continued to eat her applesauce with one hand and pick up the cup with the other and drink one-handed without spilling. I'm just not sure where all this came from, but way to go Addy!!!!!
Friday, was a too cold to go to school day, so Addy and I stayed home in the warmths of the house and played all day. At one point we were playing with alphabet blocks. I heard Addy say the name of a letter that I didn't think she knew, so I proceeded to hold up a block one at a time and she named almost every letter of the alphabet. Again, I was amazed. Makes me feel kind of dumb, that I didn't even know my own kid knew her alphabet. Keep up the good work Addy!
So last week, the OT gave Addy the test. I sat and watched in utter amazement. Many of the tasks that she was asked to do, she was actually getting right. Block building, puzzles, bead stringing, writing and folding paper were some of the tasks, just to name a few. The following therapy session, we went in for Addy's test results. To everyone's astonishment, Addy scored an age equivalent of 34 months in grasping and 36 months in visual motor. She is only 20 months old. Even the OT was blown away. Within the past several months, Addy has just really taken off in many areas, including her fine motor.
So, the sad news is that Addy got discharged from OT at Children's Hospital, however she remains having OT through early intervention. I spoke with the OT from early intervention and she has no plans of discharging Addy. We actually have Addy's IEP this upcoming Tuesday. Addy's OT goals there will be changed to reflect working on increasing the speed of doing activities and utilizing her hand function to help improve her gross motor skills. I know that I said that it was sad news and it many ways it's happy, but also sad. Therapy has been our life for the last 2 years and we were very connected to her OT. The good news is that she is going to see Addy back in the summer to make sure she isn't showing any regression and to work on any news areas that might crop up.
So, just after giving me the news that Addy would be discharged, the OT wanted to do a quick feeding evaluation and dressing evaluation with her. So, I have to be honest here. I was a little scared about the dressing because my focus has been on so many other things with Addy, that I haven't even attempted dressing. Being so behind in her physical development, I knew that dressing would be difficult and we just hadn't started that area yet. So, as scared as I was, I sat and watched again in amazement. The OT told Addy "take off your shoes" and Addy took off her shoes. Then she said, "take off your socks" and Addy proceeded to take off her socks. This part she did need minimal help with. Then came time for the pants. With physical help to stand, Addy took off her pants and then went on to do her shirt. I was so amazed that I think I sat there with my mouth wide open. Just goes to show what sponges kids are.
Now that she was naked except for her diaper, the OT took her into the feeding room and put her in a highchair. She wanted to eval her spoon and fork use, which Addy is doing decently with. Then she asked Addy to drink from an open cup. Again, I got scared because I have yet to ask her to do this either. First drink went all down her because I think she expected there to be a lid on it. Next 4 drinks, she did without spilling a drop. She even continued to eat her applesauce with one hand and pick up the cup with the other and drink one-handed without spilling. I'm just not sure where all this came from, but way to go Addy!!!!!
Friday, was a too cold to go to school day, so Addy and I stayed home in the warmths of the house and played all day. At one point we were playing with alphabet blocks. I heard Addy say the name of a letter that I didn't think she knew, so I proceeded to hold up a block one at a time and she named almost every letter of the alphabet. Again, I was amazed. Makes me feel kind of dumb, that I didn't even know my own kid knew her alphabet. Keep up the good work Addy!
Just having fun with Dora
Addy's new favorite: putting on chapstick
Sunday, January 4, 2009
Monday, December 29, 2008
Lollipop Girl
Grandma Kris thought it would be so much fun to give Addy a lollipop that matched her outfit. Bet Grandma didn't think it was so fun when she had a large sticky drool spot on her bed when Addy was through.
Christmas
Addy had a wonderful Christmas. We weren't quite sure what her reaction to opening presents would be. To our surprise, she seemed to know just what to do. the cutest part was that she would open each gift and study the box very closely before asking us to open it. So far, the two most popular items seem to be the Dora House (#1 in her book) and the baby tiger. The baby tiger makes tiger noises and drinking noises when you play with him. She also got a cleaning set from Grandma Kris and she loves to attempt to sweep the floor. It's very cute. We are now in pursuit of Dora figurines to fill the playhouse. She has quite a few already, but of course with her, you can never have enough Dora. Aaron and I are going Dora crazy over here.
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